Monthly Archives: June 2012

Arguing With Someone Who Has Alzheimer’s

Dear Family and Friends,

My friend, Barb Webb, whose husband has Alzheimer’s, offers another look into living with a loved one who has Alzheimer’s.  Today, she talks about the frustration and futility — and sadness — of arguing with Al.

Sometimes it’s very hard to read what Barb writes. Her honesty is raw and painful.  I appreciate her so much for her openness, however, and I think you will as well.

From Barb:

I think the dynamics of arguing are interesting.  Each couple argues in their own unique way.  But those dynamics can change, especially when dealing with someone who has Alzheimer’s.

 For example, I was raised in a family of “yellers”.  When I would be in a heated argument, I would yell, always being careful to try and not yell anything I couldn’t take back, but yelling just the same.  Al’s attitude has always been, “I will be glad to discuss this issue with you when you can calm down and be rational.”  Rational, passional, I wanted to get it off my chest in the way I was always used to doing.  But over the years, Al’s way of dealing with disagreements rubbed off on me and most of the time, I calmed down and then discussed this with him.  I have to admit, it is the best way to deal with problems – much better than yelling and not really accomplishing anything.  But now that Al has Alzheimer’s our roles have changed. 

 Al is always wanting to help me.  That hasn’t changed.  Most of the time, I am very grateful for that, but when it comes to the kitchen therein the problem lies.  We have a V-shaped corner where our sink is located, so for the two of us to be working in that area is quite difficult.  Usually when he asks how he can help, I tell him to wait until I am done doing whatever I am doing and then he can do a task I need completed.  But tonight he just wouldn’t get the idea.  He asked three times while three times I told him to wait until I was done rinsing the dishes and then when I started to wash them he could dry.  By the 3rd time, I was frustrated and he was mad.  He started arguing with me that I was controlling and not letting him help.  I tried again (calmly) to explain everything to him.  It only made him madder and by the time he was done, he was going to sleep in the other bedroom and never talk to me or try to help me again.  I have to be honest.  I told him that was fine with me.  I know I should have stayed calm, but I was at my wit’s end.  Of course, the only thing that accomplished was me washing AND drying the dishes myself. 

 I am currently at my computer and he is sitting in the family room not sure what happened.  After I am done here, I will go to him and just start talking normally because already he doesn’t remember the argument.  That is the only good thing about Alzheimer’s – I can finally argue my heart out and yell and within five minutes he doesn’t remember any of it, I feel so much better and life goes on.   

 I, too, was raised in a family of “yellers.” Well, in truth, my mom and I were the yellers and my Dad was always very calm. In the tradition of marrying someone like your father, I married a very calm man who is always willing to discuss everything — even things about which we strongly disagree — with reason and love. 

Sometimes that’s very frustrating!!! Ha!

Barb’s scenario is frightening to me. It’s my husband’s mom who has Alzheimer’s, and my sweet husband who is at greatest risk for the disease in our family. Dave also is a huge help around the house….and our 26-year marriage is filled with doing almost everything together. Grocery shopping, laundry, changing sheets… .

Will I be living Barb’s scene in 20 years? Sooner?

I am selfish. I want a retirement filled with travel, visiting kids and grandkids, and enjoying more one-on-one time with the man who has filled my life with wonder at the kindness and generosity present in this world.

That’s why I will participate in the WALK TO END ALZHEIMER’S this year. To work toward my dream of a long, loving retirement with my husband.

Sincerely,

Bonnie

WDRB Story on Blondes vs. Brunettes

Thanks to WDRB TV for airing a story about the Blondes v Brunettes flag football fundraiser for the Alzheimer’s Association, which took place last Saturday and raised nearly $13,000!

http://www.wdrb.com/story/18747267/blondes-vs-brunettes-for-a-good-cause

 

 

Alzheimer’s Means You Can’t Say Goodbye

Dear Family and Friends,

My colleague, Danielle Waller, shared an article with me this morning (http://www.dailycal.org/2012/06/03/remembering-not-to-forget/)  by Michelle Robinson of The Daily Californian that included this quote:

Human nature runs deep within every person, but it is only a part of the recipe that makes up a personality. It is the experiences, and the lessons learned along the way, that truly define an individual. Without the recollection of past memories, we are reduced to young children who lack the wisdom gained from experience.

Robins was lamenting her grandfather’s deterioration from Alzheimer’s.  She raised in her article what I believe is an insightful question:

What is a person, if not his experiences and memories?

Robinson pondered this question as the Alzheimer’s progressed, and she wrote that she found herself distancing herself from the man she used to feel so close to, commenting:

Without the groundwork of our shared experiences, there was no glue to maintain our connection.

and

I dwelled on the mutual not-knowing, how neither of us recognized the other any longer. I thought that all there was to our relationship were the memories we shared.

That lost connection made his passing particularly hard for her. I get that. Not being able to say goodbye is one of the hardest parts of death. Indeed, my memories of saying goodbye to my Dad over the course of his nine-month battle with cancer is filled with sweet moments that can make me laugh out loud and then tear up at a moment’s notice. We connected over and over, talking through experiences and concerns in a way that we never had before, notwithstanding that I had felt very close to my Dad while growing up. This was a new level of connection, and I’m so grateful for that.

As I read Robinson’s article and thought about my mother-in-law, however, I thought about how often I dwell on the lack of connection I have with Mom. Whereas my Dad’s dying days brought new closeness, Mom’s bring distance. It’s especially hard, because she lives seven hours away, so we can’t see her very often.

I often think about the fact that we don’t receive her letters or phone calls any more. And that she can’t read or understand mine.

I am saddened by the knowledge that she and Dad no longer stop by on their way to some fascinating Elder Hostel, or during their latest meandering road trip to see as many children and grandchildren in a single trip as possible. And that we can’t visit her and Dad  during their annual trip to her beloved California to escape the Wisconsin winters.

Robinson said in her article that she began to focus on her own sweet and poignant memories of her grandfather, and that helped her say goodbye. That’s true…our memories of our beloved ones with Alzheimer’s do help us. But, as heartbreaking as it was to lose my Dad so early in my own life, I lost my “second mother” a lot earlier.

That’s why I fight for a cure. That’s why I’m chairing the 2012 Louisville Walk to End Alzheimer’s.  Have you registered your team yet? Please visit www.alz.org/walk to do so.

Sincerely,

Bonnie