Tag Archives: grandparents

A Personal Loss

Dear Family & Friends,

My sweet mother-in-law, Natalie (“Mom”), passed away last Thursday morning after 13 years with Alzheimer’s.  Mom had lived a life infused with great emotional courage, a constant focus on family, and a whole lot of pure and unadulterated fun. While the last few years took away much from her, her first 80 years were extraordinarily full.

First things first: As much as I HATE Alzheimer’s Disease and what it did to both Mom’s brain and to her quality of life, I know that she is now joyous and that her brain is once again whole. I know that she is celebrating the reunion with her own mother who also suffered dementia; her beloved husband of more than 40 years, David; her sister; and many other family members and loved ones. I also know that my husband and I will see her again and that she will have many things to share with us when we arrive. I can just see her with a huge grin on her face, waving her arm and saying, “Come see, come see! You won’t believe this!”

I’d like to share a little bit about Mom and the three descriptors that always come to mind when I think of her: courage, family and fun.

Courage: In 1959, Mom had three young girls and was pregnant with my husband when her first husband died very suddenly. Perhaps some of you have suffered through a tragedy similar to this, and can imagine how difficult this period must have been for Mom, but it is beyond my comprehension. What courage she portrayed, giving birth to her newborn son and raising all four of her children on her own for several years.

Family: She found and nurtured an amazing love with her second husband, David. When I first met them, they had been married more than 20 years, and yet they still held hands everywhere they went, even to the grocery store.  She clearly cherished her relationship with him, and was an example to me of how to live your wedding vows every day as if they had been said only moments before.  (Certainly, there were moments of gratitude when, after his death in 2005, Mom’s Alzheimer’s often kept her from remembering her great loss.)

Mom also was an example of celebrating family gatherings. The focus was always much more on the people, than on the logistics or the food or the venue.

Fun: That said, Mom did love a party.  Even well into the Alzheimer’s, she would be giddy with delight when a group of us would enter her room and tell her we were going to celebrate … something, anything.  It may have been just lunch out, or as time went on, just enjoying a hot fudge sundae together. But if we told her it was a party, she was IN!

I am grateful that Mom remained pleasant throughout her years with Alzheimer’s.  Even near the end, even as she lost her ability to focus on anyone or anything, she never suffered through the anger or aggressiveness that sometimes accompanies this horrible disease.  I remember giving her a manicure and pedicure once a few years ago.  She held her fisted hands up in front of her face, shaking them back and forth, her mouth in a wide smile saying, “Oooooh, Ooooooh, Ooooooh,” and grinning, a little tear of joy slipping out of her eye.

I know that it could have been much different. I’ve seen persons Alzheimer’s truly frightened to their core, believing that someone or something intended to hurt them. We were spared that particular horror with Mom.

I am grateful to Natalie for all that she taught me, and for raising the wonderful man who became my husband. In honor of her life, I will continue to be involved in the Alzheimer’s Association’s research efforts into the causes of, and treatments for, this insidious disease. I will continue to support the programs that give helpful information and relief to family members and caregivers.  I will continue to fight for a cure so that my husband and children — and everyone else’s loved ones — can be free of the threat of Alzheimer’s.

Bonnie

 

From Storming the Beaches at Normandy to Forgetting How to Hold a Spoon

Dear Family and Friends,

We all participate in the Walk to End Alzheimer’s for different reasons.  Michelle Bries sees her participation as a way to “pay it forward.”  Here is Michelle’s story:

“Thank you Norb and Dolly Bries. I choose to pay the joyful memories you have given me forward by being an active member of the Alzheimer’s Association. I’m walking to help reclaim the future for millions. By participating in the 2012 Alzheimer’s Association Walk to End Alzheimer’s, I’m committed to raising awareness and funds for Alzheimer research, care and support.

“While a junior in high school, my paternal grandparents were diagnosed with Alzheimer’s disease and dementia. There was, unfortunately, a dramatic event which became the catalyst to move both grandparents into an assisted living facility.

“Like myself, my father is an only child, and the decision to move his parents into a home was not an easy one, but the best. They enjoyed the facility and in their minds, they were staying at the resort in South Carolina they had frequented on vacation over the years. My grandfather raved about the ‘resort’s’ attentive service and was always surprised when the staff at the front desk turned down his Monopoly tip money.

“As the disease progressed, the mental state digressed from pleasant vacation reminiscing to horrid war stories, to forgetting how to hold a spoon. The mental deterioration of my grandparents was also shown in the expression on my father’s face every time we went to visit. My grandparent’s physical presences perished after 8 and 9 years. As taps played for my grandfather, who passed first, the emotion from my family was overpowering. A man who had stormed the beach at Normandy, raised my fabulous father and taught me Chinese Checkers, inspired me to pay what I can forward. The strength my father embodied and the enormous respect I gained for him during this decade, inspired me to pay what I can forward.”

I want to thank Michelle for sharing her story. Sometimes it’s painful to share these stories, because doing so reminds us of all that we have lost.  But like many of you, Michelle is using her memories as a challenge.

Sincerely,

Bonnie

Alzheimer’s Means You Can’t Say Goodbye

Dear Family and Friends,

My colleague, Danielle Waller, shared an article with me this morning (http://www.dailycal.org/2012/06/03/remembering-not-to-forget/)  by Michelle Robinson of The Daily Californian that included this quote:

Human nature runs deep within every person, but it is only a part of the recipe that makes up a personality. It is the experiences, and the lessons learned along the way, that truly define an individual. Without the recollection of past memories, we are reduced to young children who lack the wisdom gained from experience.

Robins was lamenting her grandfather’s deterioration from Alzheimer’s.  She raised in her article what I believe is an insightful question:

What is a person, if not his experiences and memories?

Robinson pondered this question as the Alzheimer’s progressed, and she wrote that she found herself distancing herself from the man she used to feel so close to, commenting:

Without the groundwork of our shared experiences, there was no glue to maintain our connection.

and

I dwelled on the mutual not-knowing, how neither of us recognized the other any longer. I thought that all there was to our relationship were the memories we shared.

That lost connection made his passing particularly hard for her. I get that. Not being able to say goodbye is one of the hardest parts of death. Indeed, my memories of saying goodbye to my Dad over the course of his nine-month battle with cancer is filled with sweet moments that can make me laugh out loud and then tear up at a moment’s notice. We connected over and over, talking through experiences and concerns in a way that we never had before, notwithstanding that I had felt very close to my Dad while growing up. This was a new level of connection, and I’m so grateful for that.

As I read Robinson’s article and thought about my mother-in-law, however, I thought about how often I dwell on the lack of connection I have with Mom. Whereas my Dad’s dying days brought new closeness, Mom’s bring distance. It’s especially hard, because she lives seven hours away, so we can’t see her very often.

I often think about the fact that we don’t receive her letters or phone calls any more. And that she can’t read or understand mine.

I am saddened by the knowledge that she and Dad no longer stop by on their way to some fascinating Elder Hostel, or during their latest meandering road trip to see as many children and grandchildren in a single trip as possible. And that we can’t visit her and Dad  during their annual trip to her beloved California to escape the Wisconsin winters.

Robinson said in her article that she began to focus on her own sweet and poignant memories of her grandfather, and that helped her say goodbye. That’s true…our memories of our beloved ones with Alzheimer’s do help us. But, as heartbreaking as it was to lose my Dad so early in my own life, I lost my “second mother” a lot earlier.

That’s why I fight for a cure. That’s why I’m chairing the 2012 Louisville Walk to End Alzheimer’s.  Have you registered your team yet? Please visit www.alz.org/walk to do so.

Sincerely,

Bonnie

Walk Recruitment Event Makes Alzheimer’s Even More Personal

Dear Family and Friends,

As involved as I am in the Alzheimer’s Association of Greater Kentucky and Southern Indiana, I hear a lot of statistics about the disease.  Did you know that there were 80,000 Kentuckians with Alzheimer’s in 2011, and that more than 264,000 family members and friends provided these persons with more than 300,000 hours of unpaid care?

But here’s  where it gets personal. So far this spring, I have attended two community events to recruit teams for the Walk to End Alzheimer’s in Louisville on Sept. 8 and, without fail, every single person we talk to at these events has been affected in some way by Alzheimer’s disease.  For some, it was a grandmother or grandfather who had died, or was currently struggling with the disease. Several people had lost their husband or wife. For others, it was a friend, some close, some more distant.  One gentleman at a Farmer’s Market last Saturday first answered “no” when I asked him if he knew someone who was affected…but then he backpedalled and said, “Oh yes, yes I do,” as his face took on a sadness in stark contrast to the sunny morning in St. Matthews.

That same Saturday, a woman about my age and I shared stories about our mothers-in-law.  And we both lamented that Alzheimer’s is one of the top 10 causes of death in the United States for which there is no cure. How can that be the case, so many years after the disease was identified? Yet, to date, there is not even a treatment to stop the progression of the disease as it creeps through the brain, destroying both cherished memories and practical knowledge. There are treatments for symptoms, but nothing to stop it or cure it.

One woman did pull me aside and say that all disease, including Alzheimer’s, was the victims’ own fault for not taking care of themselves.  She proudly stated that she was 76 years old and was in perfect health, thanks to her lifestyle choices.

I suppose nothing will change that woman’s mind, but I would like to have seen the conversation between her and my mother-in-law before Mom was diagnosed.  Mom may have been subtle and even proper in sharing her points of view, but she would never have let that woman walk away without setting her straight.  I might have argued more vehemently with the woman, had I not been so shocked, and then saddened by her mindset.

Mom has had high cholesterol throughout all the years I’ve known her. She was born with the propensity for it, and until she started losing her memory and ability to take care of herself, she took every precaution advised by her doctor. She took her medication religiously. She rarely ate an egg, and she watched her weight and exercised.  I don’t remember her ever being sick, in fact.  She was one of the healthiest persons I had ever known. Yet she counted that as a blessing, rather than something she’d earned.

Yes, diet and lifestyle may reduce the risk of getting Alzheimer’s disease.  But, if everywhere you look and everyone you meet has been touched by the disease in some way, we begin to understand that we have to do more to stop it. We have to find a cure.

For me, like so many of you, Alzheimer’s is personal. My husband’s grandmother suffered dementia, although we don’t know if it was Alzheimer’s. And now his mother is in the final stages.  I don’t want him to suffer the indignity and loss that always comes with this disease. And I don’t want our children to suffer that either.

I suspect Alzheimer’s is personal for you as well. Let’s do something about it. Let’s Walk to End Alzheimer’s on Sept. 8.

Sincerely,

Bonnie

College Kids Doing Good!

Dear Family and Friends,

A group of 12 college students from Western Kentucky University are planning a two-month bike trip across the country with a plan to raise $175,000 for the Alzheimer’s Association.

This will be the second time the Fijis have ridden cross-country for Alzheimer’s – the first time was in 2010 when they rode from coast to coast and raised $56,000. That ride was the inspiration of Fiji member Tyler Jury, who created the event in honor of his grandfather, who had Alzheimer’s.

 This year, the Fijis will be starting their trip in International Falls, Minn., on May 25 and riding to Key West. They expect the ride to take approximately two months and at each stop along the way, they will be hosting fundraisers for local chapters of the Alzheimer’s Association. The Greater Kentucky and Southern Indiana Chapter will benefit from stops in Evansville, Louisville and Bowling Green; visit http://www.bike4alz.org/explore-the-route/ to lean about their other stops.

This is a fantastic example of young men working together to fight a disease that, for them, is a distant possibility. I’m inspired by their commitment to a future without Alzheimer’s and while many of us cannot imagine biking more than 3,000 miles this summer, we can support their efforts to use their youth and strength to fight a cruel and unfair disease. 

To learn more about these young men and their fight against Alzheimer’s, visit www.bik4alz.org. They’ve also created a video that is available on YouTube at http://www.youtube.com/watch?v=2OJOX5MZ5Ss.

Thanks for reading!

Bonnie